Cameron Marsh, a Napa boy suffering from adrenoleukodystrophy who was profiled in a Napa Valley Register story in September, died Wednesday, a family friend reported. He had just recently turned 8.

Cameron had been diagnosed one year ago with adrenoleukodystrophy, a disorder that affects the white matter of the brain and the adrenal glands. The disease caused him to suffer a rapid neurological deterioration.

After his diagnosis, doctors expected him to live another six months to two years. He was pulled out of school at Shearer Charter, and his mom, Jina Forney-Marsh, quit her jobs at Safeway and Sizzler to provide round-the-clock care.

Deborah O’Haire, a school nurse with the Napa Valley Unified School District, had been helping the family in an official capacity but also became a family friend.

O’Haire said Cameron died Wednesday morning in his home in his mother’s arms. The Marsh family wanted to extend their gratitude to Napa residents for their generous support.

A fundraiser on Sept. 29 raised more than $15,000 for the Marsh family. Several other fundraisers and additional donations by individuals and businesses also raised money. The Marsh family also was able to find better housing, which accommodated Cameron and his wheelchair.

“The outpouring of support was incredible from the community,” O’Haire said.

The family intends to hold a public memorial service, but the date has not been scheduled.

(16) comments

mejerry
mejerry

Your son is now at peace, and has the freedom we all shall feel one day. The town of Napa shares your grief. You are what all parents should strive to be. I can't imagine what you are going through, but my heart goes out to you and your family.

4mymeredith
4mymeredith

I am so sorry to hear about your beloved son. I don't know you but I do know how you feel. Its been almost 30 years now but my 8 year old son Jake was hit and killed by car in the town of Yountville. They have not come up with a word that says how bad the pain is when something like that happens. A lady how lost her 5 year old dauthter once told me that it never gets over but it does get better. I have found that out to be true. I have live each of my days after my sons death in memory and honor of him. I am sure you will also. What you are going thur and about to go thru will be pure hell. My heart aches for you and your family. Just know there will come a day you will be with him again as I will be with Jake. I will keep you and your family in my prayers.

bmars
bmars

What moves thought us is a silence, a quiet sadness, a longing for one more word, one more touch. We may not understand why you are leaving this earth so soon, or why you left before we were ready to say Good-bye, but little by little, we begin to Remember not just how the Disease took your life, but that you Lived, Loved, and that your life gave us memories to Beautiful to forget. Love you forever Cam Cam .Grandma and Grandpa Marsh love you and your brothers and sister so much please be at peace.

alucawanza
alucawanza

As a grandmother of three little boys my heart breaks for this family. God bless you all. May you find comfort in the time you had with Cameron and think of the happy times. Words fail me.

kcnapa
kcnapa

I don't know this family but my heart breaks for them. Is there an account set up so those of us who would like to donate can?

love-napa-valley
love-napa-valley

I have a 8 year old boy .. And every time I see him I remember this little angel Cameron .. he came to stay in many hearts even now he's gone and we never got to met him. His mission was short but powerful enough to change lives with love and cherish. Thanks little Cameron.

vocal-de-local
vocal-de-local

I am so sorry for your loss. It makes me realize just how fragile life is and how every moment with loved ones should be cherished.

napan79
napan79

Cameron brought a whole community together, he was one special little guy who had so much love. RIP Cameron, you will never be forgotten. Here is a link if anyone want's to make a donation to the Marsh family in this time of need. http://www.gofundme.com/1ht1n4

Napkingirl
Napkingirl

Breaks my heart and such a sweet girl as his mom.

CALCRZ
CALCRZ

To Jina and family.
I, too, went to the fundraiser at Shearer School for Cameron...My heart goes out to the family. You are so brave and with the days ahead I pray that God gives you all the strength you need to get through this time in your life. Cameron has touched so many lives. Even strangers such as myself. I have children and grandchildren that I am so blessed with. You also had an Angel, Cameron that you were blessed with...the only difference is we were all blessed with Cameron. Thank you for sharing him with us.May God Bless you all.

lkbo
lkbo

Today heaven received a new angel, one that is there way to early, take good care of him god we are going to miss him so much!! Love you CAM!!!

JMG
JMG

Rest in peace little angel may god look over his loves ones and bring them strength in this hard time.

mike68
mike68

I have never commented to a story before, but this story has moved me. I have known Jina as I am a regular customer in one of the businesses that she worked. the original story broke my heart and I attended the fundraiser in hopes of finding peace in this tragedy. I have always, and still do, struggle when children suffer and are victims of such tragedies. I believe that the unconditional love, kindness, and friendship that children express is as close to how the Bible says we should live as you can get. So why then do children have to suffer? Someone once told me that when a child is taken so young it is because thier soul is so gentle and kind that they are not meant to see the world we live in. So they are called to a better place. This has given me some measure of peace and I hope this helps ever so little. God bless the family and you will be missed, little Cameron.

morrisjames768
morrisjames768

I met Cameron at Shearer School, and bought a T-shirt. I have worn it every Wednesday. This young man was here for something, and he has changed my life forever. I have diabetes type one for 55 years, and all my doctors have told me I should have died years ago. I will never complain again. Cameron will always be my hero. Cameron mother is a very brave and caring mother. Jim Morris

prettyinpinkpina
prettyinpinkpina

May he rest in peace. Little Angel.

just sayin
just sayin

This breaks my heart. I just can't even imagine the family's pain at losing little Cameron. Jina, bless your heart for doing the only thing a mother could, and staying with your boy to the end. Please be certain to publicize the memorial, and any needs the family has, well. Even though I don't know Jina, I'd like to do a bit more to help her get back on her feet as she tries to rebuild her life with her remaining children.

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